|
|
Hospice care seeks to alleviate physical, emotional, and spiritual pain, and to control the accompanying symptoms. The phrase, Nothing more an be done for this patient, is just not true. While it may be useless to continue curative treatments, the Ho spice can give ATTENTION, FRIENDSHIP, CARE, and LOVE.
When a patient is dying, aggressive treatment becomes increasingly irrelevant to his or her real needs. With good care a patient can die without distress if we are willing to use all the new techniques in pain and symptom control which can bring relief.
Hospice care should be made available to any person with a terminal illness. We respect the patient's right to be furnished, upon request, with complete and current information regarding his or her medical condition. And to relieve anxiety, the patient is apprised of the proposed medical and nursing care plan. It should also include any significant risks that may be involved. Each and every patient shall have the right to refuse any and all treatments.
Growth House Guide To Hospice And Home Care
An overview of key issues in hospice and home care, with hypertext links to other sections of the Growth House topic database. Includes links to our "Best of the Net" selections for websites in this category, including sites that support families caring for a terminally-ill member and directories of hospice programs.
Growth House Guide To Hospice Volunteer Training
A compilation of resources for hospice volunteers and administrators of volunteer programs.
Hospice Foundation of America
National advocate in the United States for the hospice concept of care. Offers a range of books and training services for hospice professionals and the general public. Their annual teleconference is probably the world's largest single training event for end of life care, seen in over 2,000 downlink sites by more than 120,000 people. Resources include excellent publications on specialized types of grief and materials directed specifically at hospice clergy.
The Hospice Handbook: A Complete Guide
By Larry Beresford. Anyone thinking about using hospice services will benefit from this excellent introduction to hospice care. Written for a general audience, chapters introduce you to basic concepts of palliative care, when hospice is an appropriate choice, an inside look at how a hospice team operates, and practical suggestions on how to choose a hospice. This book makes good reading for hospice staff and volunteers, too.
At Home With Terminal Illness
By Michael Appleton and Todd Henschell. An easy-to-use, simple guide that is organized alphabetically. This book is written for caregivers who are not medical professionals. It explains basic issues in terminal care, including an introduction to hospice care, how hospice care can be delivered in the home, and practical caregiving tips that may be hard to find elsewhere.
International Hospice Institute & College (IHIC)
A membership organization that covers hospice and palliative care issues worldwide. The IHIC newsletter covers news, journal reviews, and case studies of facilities in many countries. Website includes an international directory of palliative care associations, fact sheets on various issues, an international events calendar, and an online bookstore. You can search the Growth House database from this site. IHIC is a member of the Inter-Institutional Collaborating Network On End Of Life Care (IHIC).
National Hospice Organization
An authoritative source for education and advocacy for hospice issues. NHO has over 2,250 provider members and 5,000 professional members from all over the world. Website includes information on how to find a hospice in the United States, hospice FAQs, recommended reading, technical publications for hospice professionals, audio tapes of past conferences, Medicare reimbursement benefit information, and links to related resources. Some features require membership in the National Council Of Hospice Professionals, but most of the site is accessible by all visitors.
Pam's Hospice Page
A collection of hospice, bereavement, caregiving and pain management resources by a hospice nurse. Includes hospice history, facts, and links. You can search the Growth House database from this site.
Judy's Hospice Page
A collection of hospice and palliative care links, with information about the Fort Worth, Texas, regional association of the Hospice and Palliative Nurses Association (HPNA). You can search the Growth House database from this site.
The Comfort of Home
By Maria M. Meyer with Paula Derr, RN. This comprehensive and reader-friendly handbook covers all the basics of practical home caregiving. Clear organization, imaginative layout, and plentiful illustrations help family caregivers quickly locate and understand each subject. Published August, 1998.
VITAS Hospice Page
A collection of hospice links offered by Pat Keller. You can search the Growth House database from this site.
Hospice Home Page by Dale Larson
A great site for hospice professionals who can look over dozens of innovative management tips first presented at Dr. Larson's "Great Ideas" sessions given at national hospice management conferences. These practical ideas cover most aspects of hospice operations, including clinical care, bereavement, volunteer management, marketing, fundraising, community education, and much more. There's also a Great Ideas Forum to allow you to exchange ideas with others. Site also includes information on Dr. Larson's publications and video training resources for volunteer and professional caregivers working with persons who face terminal illness.
Hospice For The Carolinas
Promoting hospice care in North and South Carolina. Site includes a hospice directory for those two states as well as general information about hospice care. The organization provides technical assistance to 110 hospices in the region. You can search the Growth House database from this site.
In The Light Of Dying
By Joan Taylor. The personal journal of the author, an accountant, who served as a hospice volunteer and discovered the personal growth we receive through caring for the dying. Reading this personal journal lets you sit by the bedside of ten terminally ill people, and discover the gifts they give in their final days of life. It's also a good introduction to the practical realities of hospice work and the interactions between members of the caregiving team.
Hospice Hands
This site offers features which create a true online community for hospice workers. In addition to a comprehensive collection of links, you will find job listings, chat features, and bulletin boards letting you interact with other hospice folk. Hospice directories and book reviews round out the content.
The Hospice Web
Offers one of the most complete online directories of hospices in the world, with emphasis on the United States. If you are trying to find a hospice, be sure to include this site in your search. Provides free web pages to hospices. Includes a message board where you can post hospice questions, a hospice FAQ (Frequently Asked Questions), and links to related sites.
Final Gifts
By Maggie Callanan and Patricia Kelley. This remarkable book by two hospice nurses shows how authentic communication at end of life takes on special meaning. Touching case stories show how approaching death can give a clarity and importance to how we all relate to one another. Practical suggestions on how to respond to the requests of the dying will be of value to anyone in a caregiving role. The book will also be of interest to those interested in how cognitive processes change as death approaches, explaining that the use of metaphorical language and images which is common among the dying is often interpreted as confusion by caregivers.
Hospice and Palliative Care Resources
Hospice, palliative care, and ethics resources provided by the University at Buffalo Center For Clinical Ethics. You can search the Growth House database from this site.
National Association for Home Care
Hospice and home care information.
Caregiving: Hospice-Proven Techniques for Healing Body and Soul
By Douglas C. Smith. Features "A Patient's Bill Of Rights" and practical ideas for improving the quality of care for people who are dying. Useful tools include needs assessment methods, role definition checklists, several different life review tools, guided meditations, family support checklists, spiritual care, and much more.
HospiceLink
Provides an 800 phone number to help you find a local hospice from their directory of U.S. hospice and palliative care services.
Catherine Ray's "I'm Here To Help"
Author Catherine Ray has written books for hospice volunteers and for families facing terminal illness. Her website promotes her books and provides helpful links to related caregiving resources. You can search the Growth House database from this site.
Hospice Hands Webring
One of two webrings connecting hospice sites on the net. Growth House is a member of this ring.
Hospice Care Ring
One of two webrings connecting hospice sites on the net. Growth House is a member of this ring.
alt.support.hospice
A Usenet news group for discussion of hospice issues.
Hospice Of Metro Denver
HMD is a licensed hospice and a certified home health agency serving one of every four hospice patients in Colorado -- 1,800 annually. Website includes a hospice FAQ for the general public and a section on hospice news and tips directed at medical professionals. You can search the Growth House database from this site.
Medicare/Medicaid Hospice Services
This page at the Health Care Financing Administration (HCFA) gives an overview of the hospice service benefits available via these U.S. government programs.
American Hospice Foundation
Advocate for the hospice concept of care. Offers publications, videos, and training workshops, including training on grief in the workplace and at school.
Hospice organisations in the U.K. and Ireland
Regional hospice directory.
Overview of hospice issues
Online learning module on hospice philosophy of care by Columbia University.
I'm Here To Help
By M. Catherine Ray. A book for both hospice professionals and volunteers that explains the special communication skills needed in a hospice setting or when caring for people with chronic or terminal illness. Practical advice covers how to address common issues in terminal care, how to set boundaries, how to manage conflict among caregivers, and other basic issues that come up often in hospice work.
Hospice Net
This site gives a general introduction to hospice care with many brief articles on terminal care and bereavement. The thumbnail articles are complemented by well-chosen links to major net resources. The clean site design makes navigation straightforward. The site invites visitors to send hospice-related questions via email for personal reply.
National Prison Hospice Association
Promotes hospice care for terminally ill inmates.
Hospice: A Photographic Inquiry
A moving online exhibition sponsored by The Corcoran Gallery of Art.
Correctional HIV Consortium
Expertise in AIDS and HIV disease within the corrections and criminal justice systems. Consults on development of jail and prison hospice services. CHC is active in 41 states and parts of Canada.
Hospice & Bereavement
A small links page by a hospice volunteer in British Columbia, Canada.
How We Die: Reflections on Life's Final Chapter
By Sherwin B. Nuland. An award-winning account by a noted surgeon describing in frank yet compassionate detail just what the death process is really like. Chapters cover different types of death and t he signs of dying, making clear the process es and choices that go al ong with each one. It addresses both medical and emotional realities of common conditions such as cancer, heart disease, AIDS, Alzheimer's, severe trauma, and just plain wearing out. Available in hard and soft covers, as well as in an audio casette version.
How Patients Die
A continuing education article for nurses originally published in the December 1997 issue of the American Journal Of Nursing. Covers emotional and physiologic phenomena associated with the dying process. Notes typical terminal situations such as the orthopneic position for respiratory failure, Cheyne-Stokes breathing, decreasing peripheral circulation, and other signs and symptoms of approaching death. Includes self-assessment questions to uncover attitudes about working with dying people.
The Shropshire and Mid Wales Hospice
The hospice cares for those with progressive illnesses across a broad age range. Conditions supported include cancer, AIDS/HIV, and other major illnesses. Website includes a chat room. You can search the Growth House database from this site.
Hospice Nursing
A small site by hospice nurse Gail Galloway giving information about hospice care, the role of the hospice nurse as part of a care team, and links to related resources. You can search the Growth House database from this site.
Yahoo's Hospice Links
Continuously updated.
Hospice Care: A Resource Guide
Covers Washington, Benton, Madison and Carroll Counties in Northwest Arkansas plus some general links.
Preparing for Approaching Death
A clear and understandable explanation of the signs and symptoms of approaching death, with suggestions on how caregivers can provide the most comfort in the very final hours of dying.
Living With Life-Threatening Illness: A Guide for Patients, Their Families, and Caregivers
By Kenneth J. Doka. A valuable book for families faced with severe illness, either their own or that of a loved one. Emphasizing the experience of living with illness, rather than simply focusing on its terminal phase, this guide outlines the tasks and issues that must be faced at each phase of illness, and offers workable suggestions for effective coping. Includes examples of health care proxies and living wills.
Hospice: Comforting the Dying Patient
This document is a part of Gerontology Manual, edited by Ronald G. Stone, made available by the University of Puget Sound. Provides a brief overview of hospice care, with emphasis on how to provide physical, emotional, and spiritual comfort.
Upstate New York Hospice Alliance, Inc.
Started by eight certified hospice programs that have banded together to form a provider alliance. Promotes the use of hospice services for terminally ill patients within the region. The Alliance members serve the residents of thirteen counties from the Canadian border to the New York/Pennsylvania line.
Let Someone Hold You
Paul Morrissey, a Roman Catholic priest, shares a highly personal account of his pastoral care work with the terminally ill as a member of the Visiting Nurse Service of New York City. From bombed-out slums to swank highrises, he and other members of his hospice team visit dying people of all faiths and cultures in the intimacy of their homes and families. Winner of the 1995 Christopher Award. A good read for hospice chaplains, who will identify with the balancing act between personal and professional needs.
The Hospital Handbook (Pastoral Care)
By Lawrence D. Reimer and James T. Wagner. The pastoral care service can be an important part of holistic caregiving for the dying. This book is a professional "how to" book for hospital ministry. Published January, 1988.
Hospi-Saunders
A Spanish-language hospice site based in Uruguay.
Niznik Hospice Memorial Walk
Fundraising project for hospice care.
Little Bridge House Children's Hospice
Home page for Children's Hospice South West in the UK.
Hospice Of Hilo, Hawaii
Offers hospice care in the Hilo area. Website has links to related Hawaiian resources. You can search the Growth House database from this site.
Helen House Children's Hospice
Helen House, Oxford, UK was the world's first children's hospice and probably deserves a more glittering home-page than this. The page is limited to contact details and links to other resources (including hospices) in the Oxford region. The information is clearly and economically presented but it would be nice to have more of it.
This
Hospice Care Ring is owned by
Jan Francis.
Want to join the Hospice
Care Ring?
[Skip Prev]
[Prev][Next]
[Skip Next]
[Random]
[Next 5]
